Wednesday, June 22, 2011

Blah........

Well I am writing from a hotel in Memphis. Again, I cannot sleep. Usually on days like this, when we meet with the doctor's, I don't have any problem sleeping. But as of late I have enjoyed few nights where sleep has found me. Usually it's just the night before the appointments I lose sleep, and last night was no different, so now I face driving home tomorrow with Mom on little sleep. And we are a long way from home, Toto.

We did meet with the doctor's office in Nashville today. It was fairly uneventful and we expected that. This was simply a meeting to find out how I am doing and pick up more medicine. The biggest thing is we return in three weeks and will have a CT scan done. That is big because it will tell us if the medicine is working or not. To say the least, it is going to be a long three weeks. We should also know more after that appointment about switching my care to a place in OKC. I worry as of late because I am not feeling well more and more days. It is probably side effects from the new drug. I have had several days that I have thrown up, felt like I had the flu, and don't have any energy. My pain is about the same but I deal with it on a daily basis. And I have have to be honest, I have been a little down and frustrated with all of this. We are coming up on a year of the second coming of the cancer. Almost a year of treatments, doctor's visits, driving all over the country, surgeries, needle sticks, medicine, sleepless nights, day's in bed, crazy dreams, pain all over my body, fear of the unknown, frustration with the slowness of it all, finances, sunburns, trying to communicate how I am feeling, and the list goes on. I would like to say that I am trying not to complain but I guess that is exactly what I am doing. I am writing this at 3 a.m. for crying out loud. In our quest to be honest, I guess I honestly have to say the last few days I have been really tired of it all, and frustrated with the progress of it, or lack there of. My Mom came with me on this trip and on the way here we had a great chance to talk. One of the things we talked about is how we have managed it all, while trying to stay positive and forward living. I think for me the answer isn't that complicated, it's not rooted in some great spiritual mystery, nor is it something that is found through a search of the greatest books in the world. It's really very simple, just keep going. I also think I have learned that these times, like I am going through now, are okay. In our quest to be honest I must say that right now I am not okay, and that's okay. I am mad that I am sick, I am tired of being sick, I am scared of what I cannot see in the future and I am mad and tired about that. What I must do is feel it, be honest about it, deal with it and move on. But the real key is simply to keep going, to put that one foot in front of the other. And don't get me wrong, it may be a little more complicated but not much. I find the strength to put that foot in front of the other from my faith in God, the love and support of my family and friends, and that hope and trust that God is in control. And I also know that if I keep moving that God is faithful and this too shall pass. I really think that sometimes for God it really is that simple. All he asks of us is action. To move. To not stop. To not give up. And he will take care of the rest. So that's what I am doing. Moving. Action. One foot in front of the other. I may do so with a little grumpiness, but I do it none the less, and that is okay.

That is where I am. I need prayers for sleep. I have found that all of the other things that I deal with, whether spiritual, physical or emotional, are much easier dealt with when I can sleep. I got a prescription for a sleep medicine so I am keeping my fingers crossed. We got moved into the new place last weekend and it is incredible. The kids love it. They finally got a dog and have spent a ton of time playing and laughing with her and it has been a joy to watch. Tyler has already begun to build a fort out in the pasture and I am getting settled in my new shop. I don't think the kids have spent a total of three hours inside the house since we got there. You always have doubts when you make a move like that, or at least I do, and since seeing how much we all enjoy it, those doubts are gone. It was the right move. Every thing else is good. We are waiting to have our phone, Internet and TV set up so if you send me a message and I don't respond just know we may not have Internet yet, but as soon as I can I will. (We don't get the TV set up till the 27th and to be honest I don't miss it yet!) Oh and if you might be wondering about house warming gifts, I could use tools to fill my shop up! Just kidding. (I love Lowe's by the way.) We do need prayers though. As I stated above we seem to be going through one of those periods, and we know it will pass, but we can always use all the help we can get. Thank you again to each of you, we love you guys.

Remember every day to put one foot in front of the other, drink a lot of water, and don't forget to breath...................

7 comments:

  1. Andy, thank you for doing this blog. I know it must be hard. I need you to know that I find strength in it. You inspire me.

    I'll keep putting one foot in front of the other, taking time to breath and smell the flowers along the way, and I'm trying to drink lots of water!

    Many prayers for you and your family.

    Pam

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  2. I am amazed how you are holding up. God is so good to us. Glad to hear the kids like the farm.One of the men that went to camp commented on how good they were. You are doing a fine job leading them.

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  3. Praying for you eachday.Knowing Your in God's hands . You have toched so many lives.
    The Smiths

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  4. Always thinking of you and praying for your strength. Now I know to add sleep to that prayer! You are allowed to feel all kinds of things! I think this blog is a great way to express those feelings. At least that's how I feel when I post an update on my daughter, Megan's carepage. Keep on fighting!

    Sheila Reaser
    cousin to Jeanie

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  5. Thank you for the honesty in your blogs. You are a good writer to be able to convey everything the way you do about your family and your illness in such an informative and interesting way. You don't know me, I live in your hometown area and heard about you. I'm glad to be following your blog now for the past 6 months. I am praying for you and your loved ones. You are inspiring to me. You make me want to be a better human being, and you remind me to take nothing for granted. The way you recognize the positive around you is truly heartwarming. You have a gift for choosing the right words, even when you are feeling bad. God bless you for putting your feelings out there for us all to read. May He grant you rest, renewal, and strength.

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  6. We are praying for you Andy and your family. We need to make you another dinner! We will soon! Tell Matthew when would be a good night and what you want me to make! Oh and congrats on the new house!

    -Lyndsay Burke

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  7. Andy I know just a tiny bit of what You are going through. I am amazed how you are bearing the pain & discomfort. My experience I had no pain except when I overworked {which was not very often] My wife stood by me even when I was not very pleasant be around. Keep trusting God and His word. I am praying for you. Jon

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